Bringing Epilepsy Out of the Shadows

About us

In 2028 , a group of educated, dynamic and epilepsy activists working in the development sector, got together to establish an organization for addressing the most urgent and pressing needs of people with epilepsy. True to this spirit, the organization was named epilepsy rights Foundation; later changes to Epilepsy Warriors Foundation.

Our Strategy

  1. Awareness & Education– Organize awareness sessions, conduct seizure first aid trainings
  2. Advocacy and Legal Aid– Engage duty bearers, host high level enagement meetings, identify, document and refer disability related cases to relevant authorities
  3. Capacity Building– Organize trainings, workshops
  4. Economic Empowernment

Programs

Advocacy, Awareness, Capacity building, Economic empowernment and Legal Aid and Education

Our programs are patient centred and it took the efforts of young men and women with epilepsy to design them

Advocacy

With Funding from the Disability Rights Fund we conducted an engagement meeting with the principal secretary for health in 2021, the purpose of the meeting was to advocate for the availability of anti-seizure medication in government and health facilities across the country. During the meeting position paper was submitted to government.

Awareness

We raise awareness about epilepsy in schools, churches, cooperate componies

Capacity Building

We are committed to building the capacity of our board, staff, and volunteers

Be Epilepsy Smart Program for Schools

Creating young and future advocates

We visit schools in both urban and rural areas of Blantyre to raise awareness about epilepsy. Currently, we have established two epilepsy clubs: one at Chitawira Primary School and another at Limbe Community Day Secondary School. Our goal for these clubs is to create an environment where young people and students feel empowered and unafraid of epilepsy, reject bullying both in and out of school, and advocate for their peers with epilepsy.

Join Our Youth Group

Contact us today and inquire for information on how you can be a youth group member

We have a youth group in Blantyre District where our organization is based, youth with epilepsy including our EWF team comprising of young men and women with some having epilepsy meet usually on Sundays with the foundations youth group to discuss issues that affect the youth with epilepsy, our team offers advice, solutions, inspiration and motivation. We believe that with lived experience that is one of the effectives ways we can utilize in order to reach out to the youth with epilepsy in Malawi.

What we do

Visits to Epilepsy Clinics

We visit the epilepsy clinic at Queen Elizabeth Central Hospital with the aim of sensitizing persons with epilepsy, collecting startistics and identifying disability related cases

Awareness Raising

Considering the epilepsy knowledge gap in Malawi and the challenges learners with epilepsy face, our awareness program raises epilepsy awareness in schools, churches, cooperate componies and communites across Malawi

Identify, Document and refer disability related cases to relevant authorities

We identify, document and refer disability related cases to relevant authorities, currently we following up on a case with the inducstrial court in Malawi

Formation of peer support groups

Currently we have one peer support group in Bangwe. The group meets every month and we sometimes visit the support group to share epilepsy related information

Our team

Samuel Chigamba

Executive director

Maria Mzeza

YOUTH COORDINATOR

Thandiwe Mkandawire

Accountant

Mirriam Ngwalangwa

WELL-BEING MANAGER

Dorica Mshali

PROJECT MANAGER

Our Partners and Supporters

Testimonials

A disability advocate and individual with epilepsy, passionate about enhancing the living conditions of people affected by epilepsy.

SAMUEL CHIGAMBA

MARIA MZEZA

An accountant and a fashion designer

THANDIWE MKANDAWIRE

MIRRIAM NGWALANGWA

Dedicated and passionate manager project with over 2 years of experience in non-profit organizations, dedicated to improving lives of people with disabilities

DORICA MSHALI

Contact us

+265 881 11 5924

email: epilepsywarriors82@gmail.com

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